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Jeannette Pols: The Quality of Time and Its Quantifications. Negotiations about the Feeding Tube at the End of Life. In: European Journal for Nursing History and Ethics 1 (2019). DOI: 10.25974/enhe2019-8en

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%0 Journal Article
%T The Quality of Time and Its Quantifications. Negotiations about the Feeding Tube at the End of Life
%A Pols, Jeannette
%J European Journal for Nursing History and Ethics
%D 2019
%V 1
%N 1
%F pols2019
%X The measurement and calculations of quality of life have a huge impact on policy and treatment in Western countries and global health policies. The original motivation to develop these measurements was to bring in ‘patient values’. However, it is far from clear what ‘quality of life’ comes to mean when it is quantified, and how it may correspond to things that patient value. In this paper I unravel what quantifications can and cannot make visible by ethnographically studying the different temporalities that are enfolded in different understandings of quality. To this end I analyse interviews and observations that relate how people with ALS who consider or live with a feeding tube encounter concerns with quality and temporality in their daily lives. I will show that the relevant temporalities change as qualities, rather than as quantities. Rather than ‘gaining more time’ by extending life through treatment, different types of times are added, fade away, or become lost. This can only be made visible through qualitative research.
%L 943
%K End of Life Care
%K Material Culture Studies
%K New Nursing Studies
%K Nursing
%K Quality of Life
%K Quantification
%K Temporality
%R 10.25974/enhe2019-8en
%U http://nbn-resolving.de/urn:nbn:de:0009-33-48391
%U http://dx.doi.org/10.25974/enhe2019-8en

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Bibtex

@Article{pols2019,
  author = 	"Pols, Jeannette",
  title = 	"The Quality of Time and Its Quantifications. Negotiations about the Feeding Tube at the End of Life",
  journal = 	"European Journal for Nursing History and Ethics",
  year = 	"2019",
  volume = 	"1",
  number = 	"1",
  keywords = 	"End of Life Care; Material Culture Studies; New Nursing Studies; Nursing; Quality of Life; Quantification; Temporality",
  abstract = 	"The measurement and calculations of quality of life have a huge impact on policy and treatment in Western countries and global health policies. The original motivation to develop these measurements was to bring in `patient values'. However, it is far from clear what `quality of life' comes to mean when it is quantified, and how it may correspond to things that patient value. In this paper I unravel what quantifications can and cannot make visible by ethnographically studying the different temporalities that are enfolded in different understandings of quality. To this end I analyse interviews and observations that relate how people with ALS who consider or live with a feeding tube encounter concerns with quality and temporality in their daily lives. I will show that the relevant temporalities change as qualities, rather than as quantities. Rather than `gaining more time' by extending life through treatment, different types of times are added, fade away, or become lost. This can only be made visible through qualitative research.",
  doi = 	"10.25974/enhe2019-8en",
  url = 	"http://nbn-resolving.de/urn:nbn:de:0009-33-48391"
}

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RIS

TY  - JOUR
AU  - Pols, Jeannette
PY  - 2019
DA  - 2019//
TI  - The Quality of Time and Its Quantifications. Negotiations about the Feeding Tube at the End of Life
JO  - European Journal for Nursing History and Ethics
VL  - 1
IS  - 1
KW  - End of Life Care
KW  - Material Culture Studies
KW  - New Nursing Studies
KW  - Nursing
KW  - Quality of Life
KW  - Quantification
KW  - Temporality
AB  - The measurement and calculations of quality of life have a huge impact on policy and treatment in Western countries and global health policies. The original motivation to develop these measurements was to bring in ‘patient values’. However, it is far from clear what ‘quality of life’ comes to mean when it is quantified, and how it may correspond to things that patient value. In this paper I unravel what quantifications can and cannot make visible by ethnographically studying the different temporalities that are enfolded in different understandings of quality. To this end I analyse interviews and observations that relate how people with ALS who consider or live with a feeding tube encounter concerns with quality and temporality in their daily lives. I will show that the relevant temporalities change as qualities, rather than as quantities. Rather than ‘gaining more time’ by extending life through treatment, different types of times are added, fade away, or become lost. This can only be made visible through qualitative research.
UR  - http://nbn-resolving.de/urn:nbn:de:0009-33-48391
DO  - 10.25974/enhe2019-8en
ID  - pols2019
ER  - 
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Wordbib

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ISI

PT Journal
AU Pols, J
TI The Quality of Time and Its Quantifications. Negotiations about the Feeding Tube at the End of Life
SO European Journal for Nursing History and Ethics
PY 2019
VL 1
IS 1
DI 10.25974/enhe2019-8en
DE End of Life Care; Material Culture Studies; New Nursing Studies; Nursing; Quality of Life; Quantification; Temporality
AB The measurement and calculations of quality of life have a huge impact on policy and treatment in Western countries and global health policies. The original motivation to develop these measurements was to bring in ‘patient values’. However, it is far from clear what ‘quality of life’ comes to mean when it is quantified, and how it may correspond to things that patient value. In this paper I unravel what quantifications can and cannot make visible by ethnographically studying the different temporalities that are enfolded in different understandings of quality. To this end I analyse interviews and observations that relate how people with ALS who consider or live with a feeding tube encounter concerns with quality and temporality in their daily lives. I will show that the relevant temporalities change as qualities, rather than as quantities. Rather than ‘gaining more time’ by extending life through treatment, different types of times are added, fade away, or become lost. This can only be made visible through qualitative research.
ER

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Mods

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  <subject>
    <topic>End of Life Care</topic>
    <topic>Material Culture Studies</topic>
    <topic>New Nursing Studies</topic>
    <topic>Nursing</topic>
    <topic>Quality of Life</topic>
    <topic>Quantification</topic>
    <topic>Temporality</topic>
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European Journal for Nursing
History and Ethics (ENHE)

Official Publication of the
European Association for
the History of Nursing

ISSN 2628-4375
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